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Week of Events
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Early-Onset Parent Roundtable – Transitioning to adulthood
Early-Onset Parent Roundtable – Transitioning to adulthood
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT When a child has a progressive, disabling condition like FSHD, the transition to adulthood and independent life can be challenge, as much for parents as for the new adult. Sherry Aiken guides many youths (and their families) through this process.... Read More »