Western PA Chapter Virtual Meeting Monday, December 16, 2024 7:00-8:30pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting to celebrate this year's accomplishments and to start discussing our plans for 2025! Please RSVP in order to receive the Zoom link.

NOTE CHANGE OF TIME: 9:00 pm ET | 8:00 pm CT | 7:00 pm MT | 6:00 pm PT RESCHEDULED FROM SEPTEMBER MEETING Christina's World, by Andrew Wyeth Living with FSHD can stir complex emotions that are not easy to bring to the surface or articulate. Zee Zelinski, who was diagnosed with the condition as... Read More »

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This has been an eventful year for pediatric initiatives. Ally Roets will report on action items coming out of the European Neuromuscular Center workshop she attended recently. Kristin Zwickau will share the latest on discussions with the FDA. Come with... Read More »

19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Annual Drug Development Update Presented by Nicholas Johnson, MD, Virginia Commonwealth University. This is our annual update on therapy development for FSHD. We’ll hear the latest on Fulcrum, Avidity, and Roche’s clinical trials, as... Read More »

7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific agenda or topic, but we are... Read More »