Bay Area Chapter Hybrid Meeting (In-Person and Virtual) Sunday, January 12, 2025 | 1:00-4:00pm PT Hoover Pavilion at Stanford University - in Hoover 208 211 Quarry Rd., Palo Alto, CA 94304 RSVP: https://go.fshdsociety.org/l/701273/2023-02-14/42vknk We'd like to invite you to our San Francisco Bay Area Chapter 2025 Kickoff Meeting on January 12, 2025. We will meet... Read More »

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Wheelchairs and scooters are a topic of evergreen interest to our community and some of our experts with live experiences will share their wisdom and field your questions. How you know when you will need one? What are the pros... Read More »

New England Chapter Virtual Meeting Monday, January 13, 2025 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-03-03/42xr1c Join us for chapter and FSHD Society updates, a debrief and takeaways from the November 2nd UMASS 360 event, and ideas for the year ahead. Additionally, we'll pose this question for discussion: How do you use your creativity and resilience for... Read More »

NEW DATE AND TIME: Second Monday of every month 7:00 p.m. ET | 6:00 p.m. CT | 5:00 p.m. MT | 4:00 p.m. PT Join us at Everything Early Onset for a night of trivia and quizzes on sporcle.com!! Sporcle has a wide variety of categories of trivia quizzes. One of the hosts will share... Read More »

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and Facebook. You can also listen... Read More »

19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Mindfulness is a practice that has been shown in clinical trials to reduce stress, anxiety, and depression, issues that many people living with a progressive condition like FSHD experience. These psychological symptoms can in... Read More »

San Diego Chapter Virtual Education Meeting DATE: Thursday, January 16th, 2025 TIME: 5:30 - 6:30pm PT WHERE: Zoom Meeting - RSVP for the link DETAILS: Let's kick off 2025 with BetterLife, a health and research platform for people with FSHD. Join us as Kayleigh Worek, Program Manager for BetterLife FSHD at the FSHD Society provides... Read More »

7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific agenda or topic, but we are... Read More »

Sacramento Chapter In-Person Social Gathering Saturday, January 18, 2025, from 10:00am-12:00pm PT Cosumnes River Preserve - 13501 Franklin Blvd, Walnut Grove, CA 95690 Kick off the New Year with the Sacramento FSHD Society Chapter by joining us for a fun community-building event. We will be meeting at Cosumnes River Preserve in Walnut Grove to go... Read More »