5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Families are our primary social support groups and greatly influence how we live with FSHD. At the same time, every family is unique. In this conversation, we will discuss how our family dynamics affect our adventure with this chronic condition.... Read More »

NEW DATE AND TIME: Second Monday of every month 7:00 p.m. ET | 6:00 p.m. CT | 5:00 p.m. MT | 4:00 p.m. PT Are you a teenager diagnosed with FSHD? We've been there and know how scary and lonely it can be. Here at Everything Early Onset, we want to be the person we... Read More »

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and Facebook. You can also listen... Read More »

Colorado/New Mexico Chapter Virtual Meeting Tuesday, February 11, 2025 6:00 - 7:00PM MT Zoom meeting - please RSVP for the link This meeting is a chance for our Colorado Chapter to engage with our FSHD community in New Mexico by building better communications, resources and support. Please join us for engaging conversation and brainstorming. RSVP:... Read More »

Feeling Fit with FSHD 18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Rescheduled from January 23. We are thrilled to welcome back Lonwabo Nene, a South African living with FSHD who previously led a great session on exercises that have... Read More »

North Carolina In-Person Chapter Luncheon Saturday, February 15, 2025 at 1:00 pm ET Little Italy (Winston-Salem area) 696 Angus Street, Rural Hall, NC 27045 - http://www.littleitalyruralhall.com/index.html Please join us for an in-person group lunch! Come connect with fellow members, share updates and enjoy a meal together. RSVP by 2/10 to ensure we have enough seating.... Read More »