4:00 pm ET | 3:00 pm CT | 2:00 pm MT | 1:00 pm PT We are planning a special Wellness Hour event this month featuring art from our community members. We have 12 presenters and 62 examples of creativity/art to share with the community. We are starting one hour earlier than usual to make... Read More »

7:00 p.m. ET | 6:00 p.m. CT | 5:00 p.m. MT | 4:00 p.m. PT We were so pleased the several teenagers with FSHD came to last month's teen talk. Meeting another person with FSHD is life-changing. Suddenly, you are not alone. We'd like to devote this month's meeting to teens again. If you are... Read More »

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and Facebook. You can also listen... Read More »

Feeling Fit with FSHD 18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In Part two of this workshop, Frank Hanley will review exercises presented in Part 1 (presented February 27), and provide additional exercises for the shoulders, neck, face and... Read More »

Chicagoland Chapter Virtual Meeting Thursday, March 13, 2025 from 6:10 - 7:10 PM CT Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and brainstorming.