7 events found.
Week of Events
2025 Denver Colfax Marathon
Join the Denver Colfax Marathon Team for the FSHD Society! The Denver Colfax Marathon is a nationally recognized event featuring unique courses incorporating the iconic landmarks of the Mile-High City. Registration details coming soon. Join our Team to fight FSH Muscular Dystrophy. The event starts at Denver’s City Park, on the east side of Ferrill... Read More »
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Wellness Hour
Wellness Hour
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Today we'll have an open discussion around the question, who is on your rope team? Your rope team is made up of the people you rely on to hold you up when you are falling, metaphorically (and sometimes literally). Do... Read More »
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Everything Early Onset – Netflix Night
Everything Early Onset – Netflix Night
NEW DATE AND TIME: Second Monday of every OTHER month. We will meet in May, July, September, November in 2025. 7:00 p.m. ET | 6:00 p.m. CT | 5:00 p.m. MT | 4:00 p.m. PT This month we're gathering to socialize and get to know one another better. Archer would love to chat about what... Read More »
FSHD Straight Talk with Tim Hollenback
FSHD Straight Talk with Tim Hollenback
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and Facebook. You can also listen... Read More »
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FSHD University – The Pediatric MOVE Study
FSHD University – The Pediatric MOVE Study
The Pediatric MOVE Study Thursday, May 15 19:00 CET | 18:00 GMT | 1:00pm Et | 12:00pm CT | 11:00am MT | 10:00am PT More than 50% of people with FSHD develop symptoms as children or teens. When treatments to slow or stop FSHD are approved, common sense suggests that it will be best to... Read More »