7 events found.
All Day
Week of Events
2025 Denver Colfax Marathon
Join the Denver Colfax Marathon Team for the FSHD Society! The Denver Colfax Marathon is a nationally recognized event featuring unique courses incorporating the iconic landmarks of the Mile-High City. Registration details coming soon. Join our Team to fight FSH Muscular Dystrophy. The event starts at Denver’s City Park, on the east side of Ferrill... Read More »
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Young Adults
Young Adults
Young Adults Monthly Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Have you heard about BetterLife FSHD? It's the FSHD Society's pathbreaking web portal for helping you navigate your health journey. As you answer the short surveys, the system will enable you to track what you are... Read More »
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Parents’ Roundtable
Parents’ Roundtable
Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT We plan to have a guest from one of the companies working on FSHD therapies to share their progress and discuss how their trials can be more inclusive. Stay tuned. Join us for our monthly Parents’ Roundtable on... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD
Feeling Fit with FSHD 18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we meet on the 2nd and 4th Thursday of every month at 12:00 pm (noon) U.S.... Read More »