Wellness

For many people living with FSHD, the anxiety and stress of coping with disability, pain, fatigue, and interactions with others can be just as debilitating as the loss of muscle strength and function. People must deal with feelings of grief, anger, frustration, and hopelessness. FSHD takes a toll on mental health, but therapy, coaching, mindfulness, and other techniques can make a difference. Circumstances can't always be changed, but we can transform how we cope with them through knowledge, practice, and a community of support. Our "department of mental health" offers monthly Zoom meetings, webinars, articles, and resources to help you move toward greater well-being and happiness.

Resources to help you find a therapist

• American Counseling Association directory of therapists
• Rareminds for the UK, a mental health service for people with rare diseases
• Mindfulness resources from Jennifer Egert, PhD
• Innopsych - a searchable directory of therapists of color