Fundraise for FSHD, Your Way!

Each year, volunteers from across the country raise thousands of dollars to fund research into treatments and a cure for FSHD. Join this passionate community of change-makers bringing us closer to a cure.

From selling yarn to running races, putting your own spin on it makes it special. Create your own fundraiser or join one of our endurance events. Click through the options below and start fundraising, your way, today.

With questions, please contact us at FSHCommunity@FSHDSociety.org.

DIY Fundraisers

Hosting a Do It Yourself (DIY) fundraiser allows YOU to decide when, where, and how you support the FSHD Society. You choose the type of fundraiser that resonates with you, and we will provide the tools and resources to bring your idea to life.

Follow the below link to set up your fundraising page. For ideas, tips and tricks, pre-made graphics, and more: check out our DIY Toolkit >>

Start Your Fundraiser →

Memorial Fundraisers

Creating a Memorial Page is a simple yet meaningful way to honor or memorialize a family member or friend and support the mission of the FSHD Society. It celebrates their life, honors their memory, and gives hope to those who are living with FSH muscular dystrophy.

Create Your Page →

Endurance Events

Joining an endurance event is a powerful way to combine personal achievement with meaningful impact. Each mile you cover helps to fund critical research, support families and raise awareness. Join one of our charity partner events or choose any endurance event you’d like to participate in.

Check Out Our Events  

  • Triple Bypass 
  • Falmouth Road Race 
  • Create Your Own 
Contact Us for More Information →

Celebration Fundraisers

Create a personalized fundraising page to mark a birthday, holiday, special event or to honor a loved one. Tell your story and why you are helping to raise funds for FSH muscular dystrophy. Then ask friends and family to donate to your page. 

Create Your Page →

Community Impact:

  • Hundreds of events completely managed by volunteers
  • Over 10,000 donors contributing to the mission of putting an end to FSHD
  • More than $5 million raised to support FSHD research and patient programs