
Join us for the 2025 International Research Congress in Amsterdam, the Netherlands, EU.
Deadline for In-Person Conference Registration: May 15, 2025
We are pleased to announce the 2025 International Research Congress will take place June 12-13 in Amsterdam and online. Please use the above buttons to register*, book your hotel room, submit posters, and apply for scholarships.
Abstract submissions for the 2025 International Research Congress are closed. Researchers and clinicians specializing in FSHD and related fields are encouraged to participate. You can still submit an late-breaking poster submission.
The FSHD Society is offering a limited number of scholarships to cover the cost of registration and 2 nights’ hotel accommodation (for those attending in-person). Scholarship applications are closed.
*Refund policy: Registrations canceled on or before May 1st, 2025 will receive a full refund. No refunds will be given after May 1, 2025.
2025 Young Investigator Award
We invite you to submit nominations for the 2025 FSHD Society Young Investigator Award, which recognizes a junior researcher who shows exceptional promise. Qualifications for nominations may include any postdoctoral trainees, clinical fellows and junior faculty establishing their first independent laboratory (less than 5 years).
Please provide the following information about your nominee:
- Nominee's full name
- Nominee's current title and institution
- Nominee's CV or biography
- Brief statement (200 words) describing why your nominee is deserving of the award.
- Key peer-reviewed publications (no more than 3)
- Please submit your nomination by May 15.
- Email nominations to: fshdmeetings@fshdsociety.org
The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research.
With the recent advances in FSHD research and clinical advances, this conference has become catalytic in translating ideas into potential therapies.
World renowned clinicians, medical researchers, pharmaceutical industry leaders and basic scientists present and discuss new developments, reinforce collaborative efforts, facilitate new initiatives, and coordinate research and clinical activities.
Our 2024 Congress in Denver, Colorado drew more than 230 attendees including more than 50 from industry.
Thank you to our generous sponsors!

Programs and abstracts of past meetings
- 2024 Program Book
- 2024 IRC Abstract Book
- 2023 FSHD IRC Program
- 2023 IRC Abstract Book
- 2023 IRC Report in Neuromuscluar Disorders
- 2022 FSHD IRC Program
- 2022 IRC Abstract Book
- 2022 IRC Report in Journal of Neuromuscular Disease
- 2021 IRC Program
- 2021 IRC Abstract Book
- 2020 FSHD IRC Meeting Report (Skeletal Muscle)
- 2020 FSHD IRC Program
- 2020 IRC Abstract Book
- Neuromuscular Disease Journal article on IRC 2019
- 2019 FSHD IRC Program
- 2019 IRC Abstract Book
- 2018 FSHD Research Conference Program Book
- 2018 IRC Abstract Book
- 2016 FSHD Research Connect Boston
- 2015 Boston, Massachusetts
- 2014 San Diego, California
- 2013 Cambridge, Massachusetts
- 2012 San Francisco, California
- 2011 Watertown, Massachusetts
- 2010 Watertown, Massachusetts
- 2009 Watertown, Massachusetts
- 2008 Philadelphia, Pennsylvania
- 2007 San Diego, California
- 2006 New Orleans, Louisiana
- 2005 Salt lake City, Utah
- 2004 Toronto, Ontario, Canada
- 2003 Los Angeles, California