As an individual or family member affected by FSH muscular dystrophy, you are going to find that most doctors, therapists, and fitness trainers have little to no experience with FSHD. That's just the reality of living with any rare disease, but you have the power to make a difference. Learn all you can about FSHD so you can take care of yourself and guide your health care providers on how to help you maintain the best possible fitness and health.
Our downloadable brochure About FSHD provides valuable guidance. A physician or licensed therapist should be your source for specific health care recommendations, but being a knowledgeable patient makes a huge difference.
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