There is great power in community.
When we come together, each bringing our unique strengths, we inspire each other to go farther and reach higher than we can when we go it alone. Led by volunteers and supported by FSHD Society staff, the Chapter Program is our greatest opportunity to fund more research, connect more patients, and advance more progress.
Don’t see a chapter in your area on the map? Learn more about starting one.
Early-onset FSHD Chapter
The Gathering Place: Find Your Online Community
Stay Connected on Social Media
International FSHD and Muscle Disease organizations
- FSHD Europe
- AFM Téléthon FSHD support group (France)
- Amis FSH (France)
- FSHD-MD Support Group UK
- FSHD Italia
- FSHD Spain
- FSHD Diagnosis Group within the DGM (Germany)
- FSHD China
- FSHD Japan
- FSHD Israel
Learn more about the WORLD FSHD ALLIANCE