[…] to develop disease progression biomarkers that enhance future clinical trials for Facioscapulohumeral Muscular Dystrophy ( FSHD) Hats off to AMRA Medical and Avidity Biosciences for adding magnetic resonance imaging (MRI) […]
AMRA Medical cites FSHD Society’s support of its MRI study
Recently Diagnosed with FSHD?
[…] Are Here to Help! Whether you have a new diagnosis of facioscapulohumeral muscular dystrophy ( FSHD) or have been living with FSHD for some time, we understand that you may […]
The 2023 Walk & Roll to Cure FSHD
Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the […]
XPRIZE for FSHD research
SOLVE FSHD, a venture philanthropic organization established to catalyze innovation in Facioscapulohumeral muscular dystrophy (FSHD) research, is partnering with the nonprofit organization XPRIZE Foundation to host a global competition to […]
From our CEO, a call to FSHD researchers
[…] it funds on one of the most common forms of muscular dystrophy–facioscapulohumeral muscular dystrophy ( FSHD)–while urging the FSHD research community to help the NIH to achieve higher levels of spending […]