Unisciti al Registro dei contatti per la ricerca sulla FSHD La tua partecipazione è importante La FSHD Society mantiene il più grande registro di contatti al mondo di pazienti e […]
Unisciti al Registro FSHD
Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting
[…] mysterious disease that causes muscles to weaken throughout the body. Called fascioscapulohumeral muscular dystrophy ( FSHD), this disorder literally robs people of their smiles as their facial muscles fail. The […]
An FSHD Antisense Therapy Primer
[…] Duchenne muscular dystrophy, and spinal muscular atrophy. While antisense therapy for the potential treatment of FSHD is still in the preclinical stage, we do hear occasional encouraging research results involving […]
FSHD Society Announces 2020 Conferences
[…] host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders. REGISTER HERE. The FSHD Society’s 27th annual International Research Congress (IRC) will be held on June 25-26, 2020, […]
FSHD Society releases Voice of the Patient Report
[…] severity of disease symptoms and urgent need for treatment LEXINGTON, MASS. (PRWEB) NOVEMBER 12, 2020 The FSHD Society has released its Voice of the Patient Report, a landmark publication based on its […]