Commentary by Emanuele Mocciaro, PhD, San Raffaele Scientific Institute, Milan, Italy Facioscapulohumeral muscular dystrophy ( FSHD) is caused by the “anomalous” reactivation of the DUX4 gene. DUX4 has an important […]
A trio of promising advances toward treating FSHD
True Cost of FSHD survey
Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question […]
FSHD Lab Day was empowering for all
Uniting the FSHD Community in Advancing Research by Nizar Saad, PhD, Columbus, Ohio On July 8th, our lab at Nationwide Children’s Hospital (NCH) in Columbus, Ohio, in collaboration with NCH, […]
Walk & Roll to Cure FSHD
The Walk & Roll to Cure FSHD is focused on raising funds across North America to end FSHD Walk & Roll Locations Find a Walk & Roll near you! List […]
FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD
[…] nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy ( FSHD) and their families, today announced that it has awarded a $121,000 grant to co-principal […]