Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question […]
True Cost of FSHD survey
FSHD Lab Day was empowering for all
Uniting the FSHD Community in Advancing Research by Nizar Saad, PhD, Columbus, Ohio On July 8th, our lab at Nationwide Children’s Hospital (NCH) in Columbus, Ohio, in collaboration with NCH, […]
FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD
[…] nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy ( FSHD) and their families, today announced that it has awarded a $121,000 grant to co-principal […]
Extraordinary measures – An FSHD Society for everyone
by June Kinoshita, FSHD Society Our mission at the FSHD Society is to find treatments and a cure for FSHD—and then make sure everyone in the world who needs it […]
FSHD Society partnering in €21 Million project
[…] to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development of […]