Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for […]
2018 FSHD Connect videos!
The use of antioxidants in FSHD
[…] years, scientists around the world have begun to investigate the role of oxidative stress in FSHD. A 2018 study reported that muscle biopsies from people with FSHD had greater levels […]
New genetic test being developed for FSHD
[…] of genetic tests assessing disease-associated chromosomal abnormalities. Their lead indication is Facioscapulohumeral Muscular Dystrophy ( FSHD). FSHD is one of the most prevalent forms of muscular dystrophy and affects approximately […]
Patient-Focused Drug Development Meeting for FSHD
The FSHD Society announced today that the U.S. Food and Drug Administration (FDA) has approved its application to hold an externally led Patient-Focused Drug Development (EL-PFDD) meeting on facioscapulohumeral muscular […]
A giant of FSHD research shares his “regrets”
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations […]