[…] granted Fast Track designation to AOC 1020 for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). FSHD is a serious, rare, hereditary muscle-weakening condition marked by life-long, progressive loss of […]
FDA Fast Track Designation for Avidity’s FSHD therapeutic
World FSHD Day backstory
Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels […]
Hot off the press: FSHD care guideline
Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A […]
FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018
https://www.youtube.com/watch?v=2GOgTBvu-GY The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build […]
2019 FSHD International Research Congress Highlights
At the 26th annual FSHD International Research Congress (IRC) this June 19-20, held in a 19th-century palace overlooking the harbor of Marseille, the 180 attendees were treated to a spectacular […]