Last week, Mark Stone, the FSHD Society president and CEO, gave his fourth-quarter progress report on the Therapeutic Accelerator for FSHD treatments. His presentation was given via webinar to leadership […]
Progress Report on Therapeutic Accelerator for FSHD
The remarkable origins of FSHD research in America
[…] paid out by the United States National Institutes of Health (NIH) was awarded to study FSHD? Maybe you are as shocked as I was when I first heard this while […]
What is SOLVE FSHD?
The recent news that Lululemon founder Chip Wilson is committing $100 million USD to targeted FSHD research over the next six years has been called ‘game-changing’,generating tremendous excitement and hope […]
Team Up to End FSHD through the Walk & Roll
Together, we move toward a cure Ending FSHD will take all of us and the Walk & Roll to Cure FSHD makes it easy for everyone to team up – […]
True Cost of FSHD
[…] of our battle plan to ensure patients will have access to treatments by June Kinoshita, FSHD Society When living with FSHD, the costs can add up: insurance and medical bills, […]