[…] teacher, transitioning later to a career as an underwriter and legal assistant. She says that FSHD, being a slowly degenerating disease, allowed her to do a lot of living in […]
Children’s Book Author Belinda Miller Supports the Society through Donations
Lake Party Thank You Party – Matching Gift Challenge!
[…] three years. Please join us in thanking the Mackays for their extraordinary leadership in the FSHD community by making a gift in honor of their Lake Party. The Mackays will match […]
Chipotle Fundraiser in Castle Rock, CO
[…] selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD! Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock, CO on Tuesday, […]
Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. Throughout the hike, sponsored by Vestigo, Spencer will be carrying his sister Carden on […]
What Would You Like to #AskTheResearcher?
[…] years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, Dr. Rabi Tawil and […]