[…] notice confidence and determination of these patients and families, boldly demanding recognition and action on FSHD? We know the direction we need to go. That’s why you can donate with […]
A comedian’s worst nightmare
An undeniable sense of optimism
[…] up our game is NOW! More pharmaceutical companies are working to find solutions, the global FSHD environment has deepened with new discoveries, and, through your continued support, we are funding […]
Video: Molecular therapy for FSH muscular dytrophy
In this FSH Society webinar, Scott Q. Harper, PhD, of Nationwide Children’s Research Institute describes FSHD genetics and explains how gene and molecular therapy could be used to block the […]
We bring people together to fight FSH muscular dystrophy
[…] another to form a clinical trial research network, which is vital to the future of FSHD clinical trials. All of this is possible because of your loyal and generous support […]
Accessibility Hacks, mobility aids, and tips (Part 3 of 3)
[…] of us) and four years later are still using the same one. This isn’t really FSHD specific, but many of us are at the age when hearing aids are in […]