[…] – By meeting key standards of board oversight, finances, results reporting and fundraising appeals, the FSHD Society achieved accreditation by the BBB Wise Giving Alliance. This accreditation signifies that the […]
FSHD SOCIETY ACHIEVES ACCREDITATION FROM BBB WISE GIVING ALLIANCE
FSHD Cycling Team to ride again
[…] donate to George’s ride Audacious in its ambition and breathtaking in its logical execution, Team FSHD Cycling first captured our attention and our hearts in 2017 when its founder and […]
Update on Clinical Trial A083-02: a Phase 2 Clinical Study of ACE-083 in FSHD
[…] the FSH Society has worked with the drug’s developer, Acceleron Pharma, to better understand how FSHD affects patients through a survey (see story here) as well as to educate patients […]
2018 FSHD Connect preliminary agenda
We’re excited to share with you the preliminary agenda for our 2018 FSHD Connect conference, where a coalition of patient and families, top researchers and clinicians, and advocates will gather […]
Team FSHD Skyland Trail will compete in the 2019 Race Across America
From PRWeb FSHD Skyland Trail Cycling Team Logo The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds […]