[…] never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan Ability Lab in Chicago, […]
The Physiatrist’s role in managing FSH muscular dystrophy
Rare Disease Day Rare Talent Challenge
[…] better. Share a video or photo of your rare talent via social media using # FSHDRareTalent Tag three friends asking them to share their rare talents via social. In lieu […]
Mark Stone webinar now available
[…] In this webinar, Mark shares his experiences over the past six months learning about the FSHD community, and lays out his vision for how the FSH Society will empower families […]
Intelligent orthotics step forward at the MIT Media Lab
During the 2014 biennial FSHD patient conference in Boston, the FSH Society arranged for a group to visit the MIT Media Laboratory, where Professor Hugh Herr leads a visionary team […]
Moving toward well-being
[…] it does not have me by DAVID YOUNGER, PhD Austin, Texas I was diagnosed with FSHD when I was about four, at the same time my mother and grandmother were […]