[…] renovate her condominium so that it was easier for her to live in as her FSHD symptoms progressed. Her goal was not merely to improve accessibility but to create a […]
Design to thrive
Stay warm and safe
[…] Hour invited Dr. Mark Tarnopolsky of McMaster University to discuss an issue that many with FSHD face in winter: feeling especially susceptible to cold temperatures. He explains the role of […]
Feeling Fit: Exercising your hands and arms
[…] experience weakness that affects their hands, wrists, and forearms. In our March Feeling Fit with FSHD Zoom sessions, Frank Hanley takes you through exercises to keep your hands and arms […]
Raising our voice to raise our seats!
[…] the truth of this statement took place over the last several months, right within our FSHD community. We learned that Medicare initiated a process to receive comments and stories answering […]
Managing Fatigue
[…] group of women who meet monthly on Zoom and share a common bond of having FSHD. “We speak openly with each other, however we maintain confidentiality of who shares what, […]