We look forward to hearing from you! FSHD Society To make a donation: FSHD Society P.O. Box 411617 Boston, MA 02241-1617 For all other mail: 75 North Main Street Suite […]
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Walkers and Wheelchairs 101
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.
Shaking Qigong to relax your body
[…] 1998 and has had a daily Qigong practice since 2005. In 2005, just after her FSHD diagnosis, she joined Master Zhongxian Wu’s lifelong training program for Qigong. Since then she […]
Women’s health with Dr. Loralei Thornberg
[…] in the possibility of estrogen supplementation. There is no current data that estrogen improves overall FSHD disease progression. The lack of studies on women is prevalent in this situation. It […]
Tips & tricks for standing up
[…] common household material keeps my feet from slipping by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one must […]