[…] will change my life forever,” he says. His dream is to show younger kids with FSHD that their love of sport doesn’t have to end with their diagnosis. This is […]
Meet Kyle Bennett, snowboarder
How my progressive disease taught me that it’s okay to be human
[…] my home, regardless that it’s now incredibly hard to stand and walk. Yes I have FSHD (facioscapulohumeral dystrophy), a type of muscular dystrophy that slowly takes away my mobility. I […]
In Memorium: Remembering Robert F. Smith, J.D., long-time FSH Society Board member
[…] business organization and transactions from his office in Cape Cod, Massachusetts. Bob was diagnosed with FSHD at the age of 14 and had been active with the FSH Society since […]
The Ticket in the Street
[…] reaction. This was the day I was diagnosed with FSH muscular dystrophy. Facioscapulohumeral dystrophy ( FSHD) is a progressive type of muscular dystrophy that atrophies the skeletal muscles of the […]
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
[…] $250. All proceeds will go to the FSH Society. Steven Blier, who was diagnosed with FSHD as a child, is a renowned pianist and Master Coach to the San Francisco […]