[…] Congress on FY2016 spending urged lawmakers to call for NIH to increase annual spending on FSHD research from the current $7 million to $21 million. The Act, which requires the […]
21st Century Cures passes the U.S. House
FSH Society Ambassador is crowned Ms. Wheelchair USA
[…] and receive a $5,000 donation from sponsor Munzee. Congratulations Skylar!! You are an inspiring young woman, a great advocate for the FSHD and disabled communities. Read more about Skylar’s mission here.
“I decided to fight back”
[…] fundraiser at my high school with the volleyball team and the FSH society. I am ecstatic to continue working hard for awareness and to raise money for FSHD. rus pic 23
Comedian Wendy Liebman to host the Ghostly Gala
[…] you and host the evening and be there to witness this amazing community coming together to fight against FSHD,” he wrote. And now for more good news: stepping into the host and master […]
2015 Festive Evening of Song
[…] sweet home Parking: Your garage While you may rest, the work of researchers to defeat FSHD cannot. We need your support more than ever and hope you will make a […]