[…] $250. All proceeds will go to the FSH Society. Steven Blier, who was diagnosed with FSHD as a child, is a renowned pianist and Master Coach to the San Francisco […]
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
21st Century Cures passes the U.S. House
[…] Congress on FY2016 spending urged lawmakers to call for NIH to increase annual spending on FSHD research from the current $7 million to $21 million. The Act, which requires the […]
FSH Society Ambassador is crowned Ms. Wheelchair USA
[…] and receive a $5,000 donation from sponsor Munzee. Congratulations Skylar!! You are an inspiring young woman, a great advocate for the FSHD and disabled communities. Read more about Skylar’s mission here.
“I decided to fight back”
[…] fundraiser at my high school with the volleyball team and the FSH society. I am ecstatic to continue working hard for awareness and to raise money for FSHD. rus pic 23
Comedian Wendy Liebman to host the Ghostly Gala
[…] you and host the evening and be there to witness this amazing community coming together to fight against FSHD,” he wrote. And now for more good news: stepping into the host and master […]