[…] Medical School scientist Peter Jones gave a heartfelt talk about how a graduate student with FSHD inspired him to go into the field. After dinner, everyone flocked back to TD […]
Good times! TD Garden Tournament
“Into the Light” – The story of the FSH Society
[…] years, this is your story. Please share this with others to help them understand what FSHD is, the great progress that has been made, and how their support can lead […]
Ask the Physical Therapist: Running a Marathon and Customized Workouts
[…] asymptomatic. I am still fairly active. Prior to my genetic diagnosis of being positive for FSHD in 2011, I ran two NYC marathons in 2008 and 2009. I am thinking […]
On patient registries: findings from our suvey
[…] Here are the findings, summarized in a slide presentation given by June Kinoshita, FSH Society executive director, at the European Neuromuscular Center’s international workshop on FSHD patient registries. Download here: FSHSociety-ENMC Workshop
Barbara Chin leaves an enduring legacy
[…] Barbara changed the lives of many patients and families through her peer counseling. The entire FSHD community owes her so much. Barbara’s bequest helps ensure that future generations will enjoy lives free […]