[…] an organization to better serve you and reach our goal of finding a cure for FSHD. This will be a great opportunity to meet many of the staff members in […]
FSH Society’s first Open House!
Get our new Bach 2 Bowie T-shirt!
[…] care and concern for the health and well being of individuals and families affected by FSHD. Net proceeds support the FSH Society. Deadline March 30. A minimum of 25 orders must […]
2017 RAAM Kickoff Dinner
[…] at 450 Bedford Street, Lexington, MA 02420 along with donor information. Learn more about Team FSHD Cycling here! Volunteers & Committees forming now for: Raffles, Auction Items, Media contacts, Donations, […]
FSH Society Talk Radio launches first episode
[…] pilot episode, an interview with FSH Society executive director June Kinoshita, who answers questions about current research, clinical trials, and the FSH Society’s role in supporting and educating the FSHD community.
FSH Society Talk Radio – Max Adler is our November guest!
[…] FSH Society’s Celebrity Walk ‘n’ Roll, which was held in Irvine, California, from 2011 to 2014. Join us to hear his FSHD story and learn about his career and current projects.