[…] to find the right adaptive equipment we need to help us navigate the progression of FSHD. My search to stay mobile for as long as possible has led me to […]
Adventures with a robotic leg brace
Fall vaccine guide
[…] severely ill and being bedridden for a time can result in loss of muscle. With FSHD, it is that much more difficult to recover muscle volume and strength. Respiratory illness […]
Step by step. Inch by inch
[…] higher. Would I have followed his instructions if I had known that my problem was FSHD? Sadly, the answer would have been no. I would have dismissed the diagnosis as […]
Teachable moments
[…] other that allowing ourselves to grieve when we experience a loss in our fight over FSHD is quite important, so that we can get back up and continue to live […]