[…] help find a cure & provide support for those affected by FSH muscular dystrophy # FSHD: https://bit.ly/GivingTuesdayFSHD (or use the link for your personal Facebook fundraiser). As this is an event largely […]
Double your impact this #GivingTuesday
Rediscovering the Freedom of Bicycling
[…] family, and the bike rides were becoming shorter. Having been diagnosed at age 12 with FSHD, I felt lucky that I had been able to ride a bike as long […]
Win a day of self-care with Hollywood star Debby Ryan!
[…] Facebook and 4 million Twitter followers, so her ability to get the word out about FSHD is huge! We are so grateful to her for supporting us! Read more about […]
FSH Society Talk Radio with Dr. Tahseen Mozaffar
[…] field, Mozaffar serves as a principal investigator and co-investigator in clinical trials of novel therapeutic drugs for FSHD, ALS, and other neuromuscular conditions. His research interests include the pathophysiology of neuromuscular disorders, encompassing nerve […]
Has the Design for All moment arrived?
[…] their products deserve support and recognition by our community. We would love to compile a curated list of best designs for the FSHD community. Post your favorites in the comments section!