[…] humor, and a wealth of helpful tips for overcoming the impediments and inconveniences imposed by FSHD. A constant refrain of the group has been, “This is so great! We should […]
FSH Society Talk Radio Live Support Group!
Jim Chin elected chair of FSH Society Board of Directors
[…] a cure, as his son Jimmy and his wife Barbara, both now deceased, suffered from FSHD. “I am committed to our goal of having a disease-modifying drug to our families […]
Talk Radio: The FSH Society launches national chapter program
[…] alone. Currently there are 12 chapters in development and five Walk & Roll to Cure FSHD events underway. Volunteer leaders from across the country have stepped up to make a […]
Me and my cowboy boots
[…] closet for several years. He was happy to have them. When I was diagnosed with FSHD in 1994, I was terrified by the thought that I might have to use […]
Talk radio: Skylar Conover, Ms Wheelchair USA
[…] married and become a parent. She’ll share her life story and observations about living with FSHD, and, of course, working with her service dog. To learn more about Skylar, read […]