[…] exclusive license agreement with pharmaceutical giant Sanofi to develop and commercialize a novel treatment for FSHD. Sanofi is a multinational corporation valued at $36 billion, making it the ninth largest […]
Sanofi and miRecule to partner on FSHD drug program
Make an Impact This World FSHD Day With Our Orange Slice Selfie Campaign
The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last […]
$133,254 awarded to FSHD Clinical Trials Research Network
The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of […]
The 2018 FSHD International Research Congress
[…] an effort to uncover targets for therapy. Over the past decade, research has shown that FSHD is caused by dysregulation of the disease locus, either by a contraction of the […]
2018 FSHD Connect Conference
[…] Rys, Port St. John, Florida As a first-timer, I was very excited to attend the 2018 FSHD Connect Conference held in Las Vegas, Nevada, this year. As we boarded the plane […]