[…] topic, “Discovering Your Strengths.” She helped us see how our strengths can contribute to the FSHD Society in a variety of ways via education, fundraising, advocacy, support, and fun. While […]
Re-igniting my passion
Feeling Fit: Exercises for the neck and shoulders
[…] style Kung Fu, Taijiquan and multiple Qigong styles and practices. He organized and launched the FSHD Society South Carolina Chapter and served as Chapter Director. Frank designed this session to […]
Adventures with a robotic leg brace
[…] to find the right adaptive equipment we need to help us navigate the progression of FSHD. My search to stay mobile for as long as possible has led me to […]
Step by step. Inch by inch
[…] higher. Would I have followed his instructions if I had known that my problem was FSHD? Sadly, the answer would have been no. I would have dismissed the diagnosis as […]
Teachable moments
[…] other that allowing ourselves to grieve when we experience a loss in our fight over FSHD is quite important, so that we can get back up and continue to live […]