We know that patients are the experts when it comes to understanding the impacts of FSHD on their health and well-being. That’s why when we saw many discussions on social […]
Bowel and urinary issues in FSHD
FSHD Representation in Film Fest Favorite ‘Good Bad Things’
Good Bad Things breaks barriers and earns accolades by Erin Saxon, FSHD Society In August, we shared exciting news about Good Bad Things, a film that promised to challenge perceptions […]
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness
[…] organization that has transformed the science of the rare incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced its Honorary Board. The board of fourteen distinguished celebrities will work in […]
Rocking the boat with FSHD – The Ryan Levinson Story
[…] Lynn Photography. Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy ( FSHD) in 1996. Though he suffers from muscle loss typical of most people with FSHD, […]
aTyr Receives U.S. FDA Orphan Designation for FSHD drug
[…] the U.S. Food and Drug Administration (FDA) for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). Resolaris, an investigational new drug representing aTyr’s first Physiocrine-based product candidate in the clinic, is […]