What is FSHD? Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. Typically beginning in early teenage years with the loss of […]
What is FSHD
Finding FSHD: the story of DUX4 in a zebrafish
[…] models that represent the disease in a controlled laboratory setting. However, in the case of FSHD, creating an animal model which accurately represents the human disease has proven difficult. One […]
FSHD University
Go to the video playlist FSHD University is your center for education about the art and science of living with FSH muscular dystrophy. We focus on three “departments” – Physical […]
FSHD Canada Foundation awards $2.8 million to CTRN
by June Kinoshita, FSHD Society The FSHD Canada Foundation, a close partner and fellow traveler of the FSHD Society since its founders Neil Camarta and Craig Kelley first met in […]
The children of FSHD – they exist, too
[…] years ago, as we started to hear about clinical trials for promising new drugs for FSHD, I was frustrated to learn that my son Sam was too young to participate. […]