Strengthening our network in the Midwest The FSHD Family Day Conference, hosted by Nationwide Children’s Hospital and the FSH Society on June 11, 2017, drew about 70 patients, families, researchers, […]
Ohio FSHD Family Day Conference
An update on early-onset FSHD
[…] our understanding by Amanda Hill, Highlands Ranch, Colorado As many as 20 percent of patients with FSHD have an “infantile” or “early-onset” form, which is generally understood to be more severe […]
SOLVE FSHD Invests US $1 Million in miRecule
[…] 2022 (View original source.) – miRecule, Inc., an innovator of next-generation RNA therapeutics, and SOLVE FSHD, a venture-philanthropy organization catalyzing the pace of innovation to accelerate a cure for facioscapulohumeral […]
Global FSHD Registry Workshop
Participants at the ENMC workshop of FSHD registries International workshop in November reaches consensus on a global FSHD patient registry. If you are an individual with FSHD, or a family member, […]
Consensus Reached to Move Forward with Formation of International Global FSHD Patient Registry
[…] 2017) – Today the FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy ( FSHD), announced that with the FSHD Champions, an international alliance of FSHD patient advocacy organizations, […]