Map of FSHD Clinical Trial Research Network sites The FSHD Society announced today that it has awarded $300,000 a year to expand the Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network (FSHD CTRN), […]
FSHD Clinical Trial Research Network expands to four new sites
First Meeting of FSHD Israel
[…] View from our meeting place! This past August 9th was the first official meeting of FSHD Israel, initiated by my 18-year-old daughter Hallel after we represented Israel in the first […]
Applying AI to FSHD research
Using Artificial Intelligence to Analyze FSHD Data The FSHD Society announced that it is launching a collaboration involving the FSHD Clinical Trial Research Network (CTRN) and BullFrogAI, an innovator in […]
(Cautious) optimism in FSHD drug development
[…] are critical in helping to transform optimism into reality by Ken Kahtava, Chief Business Officer, FSHD Society Breakthroughs in FSHD research have identified the primary mechanism that causes FSHD. It […]
Treatments for FSHD: A broader view
[…] the Research program for Neuromuscular Disorders. We hear that currently there is “no cure for FSHD,” but this does not mean there is no treatment. Treatment and cure are two […]