On June 20, we will celebrate the inaugural World FSHD Day to raise awareness for Facioscapulohumeral muscular dystrophy. Participants from across the globe, including individuals with FSHD, their families and […]
Celebrate World FSHD Day on June 20
Recently Diagnosed with FSHD?
[…] Are Here to Help! Whether you have a new diagnosis of facioscapulohumeral muscular dystrophy ( FSHD) or have been living with FSHD for some time, we understand that you may […]
AMRA Medical cites FSHD Society’s support of its MRI study
[…] to develop disease progression biomarkers that enhance future clinical trials for Facioscapulohumeral Muscular Dystrophy ( FSHD) Hats off to AMRA Medical and Avidity Biosciences for adding magnetic resonance imaging (MRI) […]
FSHD 360
[…] about the latest research, managing your condition, and empowering our community! Every person diagnosed with FSHD embarks on their own unique journey, yet none of us walk alone. FSHD 360 […]
FSHD is one of the most prevalent neuromuscular disorders
Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and […]