SOLVE FSHD, a venture philanthropic organization established to catalyze innovation in Facioscapulohumeral muscular dystrophy (FSHD) research, is partnering with the nonprofit organization XPRIZE Foundation to host a global competition to […]
XPRIZE for FSHD research
The 2023 Walk & Roll to Cure FSHD
Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the […]
Celebrate World FSHD Day on June 20
On June 20, we will celebrate the inaugural World FSHD Day to raise awareness for Facioscapulohumeral muscular dystrophy. Participants from across the globe, including individuals with FSHD, their families and […]
Recently Diagnosed with FSHD?
[…] Are Here to Help! Whether you have a new diagnosis of facioscapulohumeral muscular dystrophy ( FSHD) or have been living with FSHD for some time, we understand that you may […]
AMRA Medical cites FSHD Society’s support of its MRI study
[…] to develop disease progression biomarkers that enhance future clinical trials for Facioscapulohumeral Muscular Dystrophy ( FSHD) Hats off to AMRA Medical and Avidity Biosciences for adding magnetic resonance imaging (MRI) […]