[…] to develop disease progression biomarkers that enhance future clinical trials for Facioscapulohumeral Muscular Dystrophy ( FSHD) Hats off to AMRA Medical and Avidity Biosciences for adding magnetic resonance imaging (MRI) […]
AMRA Medical cites FSHD Society’s support of its MRI study
Recently Diagnosed with FSHD?
[…] Are Here to Help! Whether you have a new diagnosis of facioscapulohumeral muscular dystrophy ( FSHD) or have been living with FSHD for some time, we understand that you may […]
The 2023 Walk & Roll to Cure FSHD
Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the […]
XPRIZE for FSHD research
SOLVE FSHD, a venture philanthropic organization established to catalyze innovation in Facioscapulohumeral muscular dystrophy (FSHD) research, is partnering with the nonprofit organization XPRIZE Foundation to host a global competition to […]
The Global FSHD Innovation Hub
[…] Canada Blaine Penny and Lawrence Korngut, MD. This is a very exciting time for the FSHD community, as new therapeutics are advancing through clinical development and the global patient community […]