by June Kinoshita Dr. Jeffrey Statland The FSHD Clinical Trial Research Network (CTRN), which was launched last year with a $121,000 grant from the FSH Society, has received a UO1 […]
Clinical Trial Research Network receives major award from NIH
Upcoming Denver FSHers Meeting: March 25th, 2017
[…] Beth Johnston, Development Officer at the FSH Society When my husband, Jeff, was diagnosed with FSHD in 2001 (after years of wondering what was going on with his body), we […]
Making strides toward stem cell therapies
University of Minnesota lab reports promising results in mouse FSHD studies by Fred Thys, Weymouth, Massachusetts Work by a team led by Dr. Rita Perlingeiro at the University of Minnesota […]
San Diego members get a stem cell tutorial
By Amy Bekier, San Diego, California On July 30, 2016, twenty-five FSHD patients, family and scientists assembled at Genea Biocells in La Jolla, California, to hear presentations by senior scientists […]
Gathering Place Volunteer Resources
[…] SPARK Engagement, Connection, Community, and Action! You’ll find essential information such as updates from the FSHD Society, ready access to forms and documents, upcoming training opportunities, access to past trainings […]