Last year, the FSHD Society launched an aggressive initiative to accelerate therapeutic development in FSHD. Because of our donors’ commitment and investment, we hosted the first Industry Collaborative Workshop for […]
Feeling the urgency of NOW. Time = Lives
Help us grow our network
The future is in YOUR hands The FSHD community has an urgent challenge and a powerful opportunity to help support research studies and upcoming clinical trials. Currently, there are nearly […]
FSH Society sets all-time record in funding research
[…] Advisory Board. Winning projects from this round include deep dives into how the genetics of FSHD affects the early development of muscle cells and into the lingering and all-important mystery […]
Matching Gift
[…] Multiply the Impact of your Gift! Did you know you can double your support for FSHD Society, without even giving a dollar more? You can if your employer participates in […]
The Future is Now for the Voice of the Patient
At the end of the day, if there were a drug that stopped FSHD in its tracks, would you want it, even if it did not restore what you have […]