[…] June 20, 2019, at age 32 after sustaining severe head trauma from a fall. The FSHD community mourns her tragic loss. She wrote this essay for us shortly before her […]
Mika Mae’s story
Southwest Florida Chapter
[…] to the Southwest Florida Chapter! Thank you for visiting the Southwest Florida Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, […]
Western PA Chapter
[…] to the Western PA Chapter! Thank you for visiting the Western Pennsylvania Chapter of the FSHD Society which officially launched in June 2018. We are here to build a local […]
New England Chapter
[…] to the New England Chapter! Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, […]
Greater Philadelphia Chapter
[…] to the Greater Philadelphia Chapter! Thank you for visiting the Greater Philadelphia Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local […]