Daniel Perez Daniel Perez, president and CEO of the FSH Society, represented the FSHD community at last week’s meeting of the Muscular Dystrophy Coordinating Committee (MDCC). The day-long meeting was […]
FSH Society’s Daniel Perez presents to MDCC
Share to be Aware: FSH Society Launches #CureFSHD Campaign
[…] campaign, #CureFSHD! The purpose of the campaign is to spread awareness and educate people about FSHD. We will begin sharing impactful photographs of people with FSHD overlaid with little-known facts, warning […]
More than meets the eye (and ear)
[…] difficulty adapting to the physical stresses of an active military life, he was diagnosed with FSHD Type 1. “I never imagined being medically retired from the military due to FSHD […]
Bay Area Family Day Video and Slides
[…] talks to see the slides. Click on “video” to watch the recorded talk. Advances in FSHD treatments Getting ready for FSHD clinical trials, Jeff Statland, MD Why we think FSHD […]
FSH Society Releases White Paper on Clinical Trial Readiness
[…] leaders to discuss the current state of clinical trial preparedness for facioscapulohumeral muscular dystrophy ( FSHD). The Society is the world’s largest research-focused patient advocacy organization for FSHD, a hereditary […]