[…] Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance of raising public awareness, because you first must […]
Hot off the press! FSH Watch Fall 2015 issue
NIH funding for Facioscapulohumeral muscular dystrophy sets new record
[…] campus. We have some good news to share on National Institutes of Health funding for FSHD. As part of the FSH Society’s committee work in Washington, DC, we recently received […]
FSH Watch 2016 Issue 1 is out!
[…] as well as news about your Society, regional meetings, and upcoming events. Individuals living with FSHD share their thoughts about “coming out” and their responsibilities as advocates and research participants. Highlights […]
FY2016 Donor Impact Report is here!
When my mother, Carol, was diagnosed with facioscapulohumeral muscular dystrophy ( FSHD) in the late 1950s, she was told she had only five years to live. As appalling as we […]
Anson Calder Adds Orange Wallet to Collection to Benefit FSH Society
Meet the newest addition to the Anson Calder collection: The Cash Wallet in FSHD Orange! In recognition of FSH muscular dystrophy (FSHD), Anson Calder designed the Cash Wallet in the […]