Meet the newest addition to the Anson Calder collection: The Cash Wallet in FSHD Orange! In recognition of FSH muscular dystrophy (FSHD), Anson Calder designed the Cash Wallet in the […]
Anson Calder Adds Orange Wallet to Collection to Benefit FSH Society
FY2016 Donor Impact Report is here!
When my mother, Carol, was diagnosed with facioscapulohumeral muscular dystrophy ( FSHD) in the late 1950s, she was told she had only five years to live. As appalling as we […]
Fundraise YOUR way
by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join […]
Avidity begins Cohort C enrollment in FORTITUDE trial
[…] Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD community and their answers to some FAQs: October 30, 2024 We are very pleased […]
When I finally discovered the benefits of support groups
[…] of sitting around a table and talking to others about my struggle with facioscapulohumeral muscular dystrophy ( FSHD). In retrospect, my viewpoint was shortsighted and selfish. My first actual experience with support […]