[…] – Avidity TRIAL NAME: Phase 1/2 Study of del-brax in People With Facioscapulohumeral Muscular Dystrophy (FSHD) ABBREVIATION: FORTITUDE™ STATUS: Recruiting See Study Website See on ClinicalTrials.gov THE BASICS Who […]
Avidity’s FORTITUDE Trial
FSH Watch 2016 Issue 1 is out!
[…] as well as news about your Society, regional meetings, and upcoming events. Individuals living with FSHD share their thoughts about “coming out” and their responsibilities as advocates and research participants. Highlights […]
Using our leverage
A few years ago, we told our donors that a gift to the FSHD Society “is one of the most powerful investments you will ever make to advance medical research.” […]
$3.4 million to speed us on our journey (Part 2)
[…] all our research funding went to basic research aimed at discovering the genetic cause of FSHD and advancing understanding of the disease itself. We have moved into a new era […]
NIH funding for Facioscapulohumeral muscular dystrophy sets new record
[…] campus. We have some good news to share on National Institutes of Health funding for FSHD. As part of the FSH Society’s committee work in Washington, DC, we recently received […]