To crack the code of FSHD, patients are absolutely essential All of the breakthroughs-the discovery of the genetic causes, understanding why some patients vary so greatly in the severity of […]
For Patients & Families
East Tennessee Chapter
[…] of the East TN chapter Thank you for visiting the East Tennessee Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, […]
Wisconsin Chapter
Welcome to the Wisconsin Chapter! Thank you for visiting the Wisconsin Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and […]
South Carolina Chapter
[…] to the South Carolina Chapter! Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local […]
2019 Year-End Report
Thank you In 2019, you were the catalyst that empowered the FSHD Society to launch an aggressive plan to accelerate therapeutic development for FSHD. We brought together pharmaceutical companies, researchers, […]