Welcome to the Dakotas Chapter! Thank you for visiting the Dakotas Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and […]
Dakotas Chapter
Recently published research
[…] our many donors for providing the funding to advance our scientific and medical understanding of FSHD! β-catenin is central to DUX4-driven network rewiring in facioscapulohumeral muscular dystrophy. Banerji CR, Knopp […]
We Heard Your Voice
by June Kinoshita, FSHD Society On June 29, 2020, the FSHD Society convened its landmark Voice of the Patient Forum. Patients and family members testified by livestream and email to […]
Year End Giving
[…] forward in all the areas mentioned below and made expansive gains in engaging the global FSHD community – speaking with one voice, one million strong. Despite events beyond our control, […]
Which symptoms have the biggest impact on your life?
On April 21, the FSHD Society is convening its landmark Voice of the Patient Forum, our community’s opportunity to testify to the FDA on the impact FSHD. An important question […]