[…] about the latest research, managing your condition, and empowering our community! Every person diagnosed with FSHD embarks on their own unique journey, yet none of us walk alone. FSHD 360 […]
FSHD 360
FSHD is one of the most prevalent neuromuscular disorders
Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and […]
From our CEO, a call to FSHD researchers
[…] it funds on one of the most common forms of muscular dystrophy–facioscapulohumeral muscular dystrophy ( FSHD)–while urging the FSHD research community to help the NIH to achieve higher levels of spending […]
Unisciti al Registro FSHD
Unisciti al Registro dei contatti per la ricerca sulla FSHD La tua partecipazione è importante La FSHD Society mantiene il più grande registro di contatti al mondo di pazienti e […]
Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting
[…] mysterious disease that causes muscles to weaken throughout the body. Called fascioscapulohumeral muscular dystrophy ( FSHD), this disorder literally robs people of their smiles as their facial muscles fail. The […]