[…] first question a drug company asks when exploring the possibility of developing a drug for FSHD is “do you have natural history study?” That’s how important it is. They won’t want […]
The Future is Now for Natural History Studies
I thought I would never find happiness ever again
[…] 2017. I thought I would never find happiness ever again following our daughter’s diagnosis of FSHD. She was six at the time, and we had never heard of the disease […]
Finding strength in our pain
The suffering that FSHD has caused has also made us stronger people By Meredith Huml Angier, North Carolina The words “no cure” and “no treatment” were dropped casually into […]
2019 Year-End Report
Thank you In 2019, you were the catalyst that empowered the FSHD Society to launch an aggressive plan to accelerate therapeutic development for FSHD. We brought together pharmaceutical companies, researchers, […]
South Carolina Chapter
[…] to the South Carolina Chapter! Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local […]