[…] all our research funding went to basic research aimed at discovering the genetic cause of FSHD and advancing understanding of the disease itself. We have moved into a new era […]
$3.4 million to speed us on our journey (Part 2)
Using our leverage
A few years ago, we told our donors that a gift to the FSHD Society “is one of the most powerful investments you will ever make to advance medical research.” […]
When I finally discovered the benefits of support groups
[…] of sitting around a table and talking to others about my struggle with facioscapulohumeral muscular dystrophy ( FSHD). In retrospect, my viewpoint was shortsighted and selfish. My first actual experience with support […]
Avidity’s FORTITUDE Trial
[…] Avidity TRIAL NAME: Phase 1/2 Study of Del-brax in Adults With Facioscapulohumeral Muscular Dystrophy ( FSHD) ABBREVIATION: FORTITUDE™ STATUS: Recruiting See Study Website See on ClinicalTrials.gov THE BASICS Who […]
Avidity begins Cohort C enrollment in FORTITUDE trial
[…] Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD community and their answers to some FAQs: October 30, 2024 We are very pleased […]