[…] locally acting “Myostatin+” muscle agent, for the treatment of patients with facioscapulohumeral muscular dystrophy ( FSHD). “We are pleased to receive orphan drug designation for ACE-083, which has shown the […]
Acceleron Receives FDA Orphan Drug Designation for ACE-083
Our San Francisco Concert and Patient Meeting is right around the corner!
[…] annual San Francisco Concert and Conference, given in memory of Joyce Hakansson. Don’t miss our FSHD Family Day Conference and Songs in the Key of Steven Blier benefit concert on Saturday, July 15, […]
FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets
[…] keys to success in such a high-pressure job, observations about the game—as well as his FSHD journey. How did he learn he has FSHD, and why did he choose to […]
Teaching medical students is therapeutic
[…] feel it is a significant honor to be able to contribute to their understanding of FSHD. I have been volunteering to teach second-year neurology students about Facioscapulohumeral Muscular Dystrophy (FSHD) […]
Johns Hopkins Studies
[…] The Johns Hopkins Hospital and the Kennedy Krieger Institute are looking for first-degree relatives of FSHD patients ages 35 and older who do not currently show symptoms. Volunteers will be […]