By Russell Caratenuto III This May 6, I’m organizing an FSHD fundraiser with the East Brunswick High School boys volleyball team in order to raise awareness for FSHD. As I […]
Volleyball fundraiser
FSH Society grant awards for February 2015 cycle
[…] chair of the FSH Society scientific advisory board Since 1998, the FSH Society has transformed FSHD research by providing grants for vital start-up funding for investigators in FSHD and research […]
Be an Advocate to #CureFSHD
[…] of the FSH Society, fronted the #FSHDselfies campaign. He was not just a spokesperson for FSHD and the FSH Society. Max has personally been affected, with family ties to the […]
Dogs destined to develop muscular dystrophy evade their genetic fate
[…] boys. This finding is an exciting proof-of-principle for diseases such as facioscapulohumeral muscular dystrophy ( FSHD), a genetic condition that affects around 1 in 8,000 men, women and children and […]
aTyr Pharma to advance Resolaris™ clinical programs
[…] a Phase 1b/2 clinical trial of its experimental therapy Resolaris in adult facioscapulohumeral muscular dystrophy ( FSHD) patients. While the number of patients in the study is small, the company stated […]