Canadian Foundation Launched! Great news for Canadians who wish to support FSHD research! Canadians can now donate funds directly towards FSHD research — and receive a tax deduction. The FSHD […]
Canadian Foundation Launched!
About ankle-foot orthoses (AFOs)
Did you know we have an active group of international FSHD advocacy leaders, the World FSHD Alliance? We meet every three months to discuss global strategies. The members bring […]
Fulcrum’s Phase 3 trial news – what does it mean for patients?
[…] will proceed with a Phase 3 clinical trial of losmapimod is big news for the FSHD community. It means that the FDA has considered the data from the Phase 2b […]
Women on Wellness – Clothing Hacks and more
The “Women on Wellness” Zoom group is for women with FSHD to discuss female-focused health and other topics. These notes are from the November 3, 2021, meeting, which began with […]
The 2013 International Research Consortium & Research Planning Meetings
Dear Colleagues, The 2013 FSH Society FSHD International Research Consortium workshop will be held on Monday & Tuesday, October 21-22, 2013, at the Massachusetts Institute of Technology, in Cambridge, Massachusetts. […]